When diagnosed before birth, parents often decide to have an abortion, whilst those who continue the pregnancy often have a miscarriage.A study of parent members of a trisomy 13 or 18 children support group has now revealed that although these mostly severely disabled children only have a very short life expectancy, their families nevertheless lead an overall happy and rewarding life, contrary to the medical profession’s common gloomy predictions at the time of diagnosis.
Lu and colleagues published a study titled, „“A Pilot Study of Expressive Writing Intervention Among Chinese-Speaking Breast Cancer Survivors,““ in Health Psychology. The goal of her research is to reduce the psychological burden among minority patients particularly among breast cancer survivors. „“Cancer patients, like war veterans in Iraq, can experience post-traumatic stress symptoms. Many times when cancer patients get diagnosed, they face lots of emotional trauma. There’s a sense of loss, depression, anxiety about going into treatment and how they are going to face the future,““ said Lu. „“They have a lot of emotional events going on in their life.““ In her research, Lu, found little attention paid to Asian-American breast cancer survivor’s psychological needs. Previous studies largely focused on non-Hispanic white samples, and she found a need to research this understudied population. Some of the challenges she noted with this population were feeling stigmatized, shame associated with cancer, cultural beliefs of bearing the burden alone to avoid disrupting harmony, suppressing emotions, and a lack of trained mental health professionals with cultural and linguistic competency. „“We thought of a very interesting way to help this problem. It’s actually fairly basic. It’s to express emotions using writing,““ she said. „“What’s so interesting is that it has been proven as a scientific paradigm.““ According to Lu, previous research found that writing about emotionally difficult events for just 20 to 30 minutes at a time over three or four days increased the immune function. The release offered by writing had a direct impact on the body’s capacity to withstand stress and fight off infection and disease. „“I based my study for Chinese-speaking breast cancer survivors on Pennebaker’s research paradigm, and we have conducted a series of studies to modify the paradigm for Asian-Americans““ said Lu. Rather than going to a hospital, Lu worked with a community-based partner to recruit participants. Lu’s research team asked participants to complete a standardized health assessment and then they were asked to write 20 minutes each week for three weeks. Three sealed envelopes were mailed simultaneously to the participants with each envelope containing different writing instructions for the corresponding week.reduslim componenti
Questionnaires assessing health outcomes were mailed to participants at three and six months after the completion of the writing assignments. Semi-structured phone interviews were conducted after the 6-month follow-up. „“The findings from the study suggest participants perceived the writing task to be easy, revealed their emotions, and disclosed their experiences in writing that they had not previously told others. Participants reported that they wrote down whatever they thought and felt and perceived the intervention to be appropriate and valuable,““ said Lu. Lu added that health outcomes associated with the expressive writing intervention include a decrease of fatigue, intrusive thoughts, and reducing posttraumatic stress after three months. She also noted a decrease of fatigue, posttraumatic stress, and the increase of qualify of life and positive affect after six months. „, Lu notes this research study contributes to the growing literature of expressive writing by illustrating the feasibility and potential benefits among Chinese-speaking breast cancer survivors using a community-based participatory research approach and a mixed method design. The results of the intervention demonstrate that writing was associated with health benefits at long-term follow-ups and how to adapt and utilize expressive writing intervention for minorities. , „Trisomies 13 and 18 are rare chromosome disorders, which are predominantly diagnosed prior to a child’s birth and sometimes after. Children with trisomy 13 or 18 generally do not survive beyond their first year of life, and those who do are severely disabled and only live a short life. When diagnosed before birth, parents often decide to have an abortion, whilst those who continue the pregnancy often have a miscarriage.A study of parent members of a trisomy 13 or 18 children support group has now revealed that although these mostly severely disabled children only have a very short life expectancy, their families nevertheless lead an overall happy and rewarding life, contrary to the medical profession’s common gloomy predictions at the time of diagnosis. The study, published in Pediatrics was conducted by Dr.
Annie Janvier of the Sainte-Justine University Hospital Center and the University of Montreal with special collaboration of the study’s second author, Barbara Farlow, Eng, MSc who is the mother of a child who died from trisomy 13. Both experts sometimes give joint talks on the subject of trisomies 13 and 18.Due to the rarity of trisomy 13 or 18 cases, i.e. one case in around every 10,500 births, the team recruited the parents via online support groups.“,The study involved a survey of 332 parents who live or have lived with 272 children with trisomy 13 or 18 and revealed that their experience vary significantly from the information they received from healthcare providers.,“According to this information, the parents were told that 87% said their child would be “incompatible with life”, whilst 50% stated their child would be “a vegetable” and 57% said the child would have led “a life of suffering”. 57% of healthcare providers said a child with these disabilities would have “ruin their family or life as a couple” (23 %).Children with trisomy 13 or 18 usually receive palliative care at birth, and those parents who chose to continue the pregnancy or want life-prolonging interventions for their child are often subject to prejudices of the medical system. The surveyed parents reported that caregivers often see their child as a “a T13” or “a lethal trisomy” infant rather than a unique baby.Dr. Annie Janvier, a neonatologist and co-founder of the Master’s program in Pediatric Clinical Ethics at Montreal University says: “Our study points out that physicians and parents can have different views of what constitutes quality of life.”More than 97% of the surveyed parents feel or felt that regardless of how lone their child lives or lived, it was/is a happy baby and enriched the family’s life and their life as a couple.Dr. Annie Janvier adds: “In the medical literature on all handicaps, disabled patients – or their families – rated their quality of life as being higher thancaregivers did.”Parents, whose baby is newly diagnosed with trisomy 13 and 18, who join a parental support group often adapt a more positive image of the diagnosis compared with the predictions of the medical profession. The majority of surveyed parents reported that the support group helped them to see their experience in a positive light.“,Barbara Farlow concludes:,“ “Our research reveals that some parents who chose a path to accept and to love a disabled child with a short life expectancy have experienced happiness and enrichment. My hope is that this knowledge improves the ability of physicians to understand, communicate and make decisions with these parents.”“,Written by Petra Rattue,“Some psychologists believe that children go through four separate stages of cognitive development, which they call Piaget’s stages.
Learn more about…Child abuse refers to any emotional, sexual, or physical mistreatment, as well as neglect of a child. A child may be afraid to tell anyone, but…“,Negative reinforcement encourages specific behaviors by removing or avoiding negative consequences or stimuli. It is not the same as punishment. Read…, „In 2008 one in every 6.6 children had a developmental disability in the USA, compared to one in every 7.8 twelve years before – a rise of 17% – researchers from the CDC (Centers for Disease Control and Prevention) reported in the journal Pediatrics. Developmental disabilities are more common in boys than girls.“, The researchers gathered and evaluated data from the 1997 through 2008 National Health Interview Surveys on kids aged 3 to 17 years. The Surveys are ongoing and are deemed to be nationally representative samples of American households., The authors included data on the following parent-reported diagnoses: , Below are some highlighted findings from this study: ,“ Several factors may have played a role in the increased prevalence, the authors added. „, The authors concluded:,““Developmental disabilities are common and were reported in ∼1 in 6 children in the United States in 2006-2008. The number of children with select developmental disabilities (autism, attention deficit hyperactivity disorder, and other developmental delays) has increased, requiring more health and education services.”“Trends in the Prevalence of Developmental Disabilities in US Children, 1997-2008” Coleen A. Boyle, PhD, Sheree Boulet, PhD, Laura A. Schieve, PhD, Robin A. Cohen, PhD, Stephen J. Blumberg, PhD, Marshalyn Yeargin-Allsopp, MD, Susanna Visser, MS, Michael D. Kogan, PhDPediatrics doi: 10.1542/peds.2010-2989 „, Written by Christian Nordqvist,Autism spectrum disorder and ADHD are conditions that doctors link to brain development. Asperger’s syndrome is no longer a separate diagnosis and… Playing and listening to music benefits both mental and physical health., The finding came from the first-large scale review of 400 research papers in the neurochemistry of music which found that music can improve the function of the body’s immune system and reduce levels of stress., Listening to music was also shown to be more successful than prescription drugs in decreasing a person’s anxiety before undergoing surgery., A report from 2011 indicated that anxiety in cancer patients can be reduced by music. Prof. Levitin explained:,“ “We’ve found compelling evidence that musical interventions can play a health care role in settings ranging from operating rooms to family clinics. But even more importantly, we were able to document the neurochemical mechanisms by which music has an effect in four domains: management of mood, stress, immunity and as an aid to social bonding.” Results showed that music increases an antibody that plays an important role in immunity of the mucous system, known as immunoglobulin A, as well as natural killer cell counts, the cells that attack germs and bacteria invading the body.Listening to and playing music can also lower levels of cortisol (the stress hormone), according to Levitin and Dr.
Mona Lisa Chanda, his postgraduate research fellow. Previous research published in the British Journal of Psychiatry demonstrated that music therapy, when combined with standard care, is a successful treatment for depression. The experts recommend a number of areas for later trials in the field. For example, identifying the relationship between the “love drug” oxytocin, group affiliation and music. They suggested administering naltrexone (an opioid antagonist drug used when a person is having alcohol withdrawal) to determine whether musical pleasure is encouraged by the same chemical systems in the brain activated by other types of pleasure, such as food.“, A study from 2011 suggested that thrilling music is similar to food and sex – more pleasure and anticipation means more dopamine.,“ The authors also urged for studies “in which patients are randomly assigned to musical intervention or a rigorously matched control condition in post-operative or chronic pain trials.” The pointed out that proper controls include TV, comedy recordings, audio books, or films. Additionally, the scientists developed an outline for future experiments with questions including: The report, published in Trends in Cognitive Sciences, was funded by the Social Sciences and Humanities Research Council (SSHRC) and the Natural Sciences and Engineering Research Council (NSERC).“, Written by Sarah Glynn , „Having a pet, especially a dog, may reduce a person’s risk of heart disease, according to the American Heart Association.“, The statement was published in the journal Circulation after experts reviewed past research on the influence of pets.,“ “Pet ownership, particularly dog ownership, is probably associated with a decreased risk of heart disease,” said Glenn N. Levine, M.D., professor at Baylor College of Medicine in Houston, Texas, and chair of the committee. Research indicates that pet ownership is likely linked to a decrease in cardiovascular disease risk factors and increased survival among patients, according to the experts. However, Levine pointed out that the reports are not conclusive and do not undoubtedly show that owning a pet directly causes a reduction in the risk of heart disease.“, Levine said:,“ “It may be simply that healthier people are the ones that have pets, not that having a pet actually leads to or causes reduction in cardiovascular risk.” Owning a dog, especially, may help lower the risk of heart disease.
This is because people who have dogs might be exercising more because they walk with them. In an investigation that involved over 5,200 adults, people who owned dogs engaged in more walking and physical activity than non-dog owners. Results showed that A 2011 study published in the American Journal of Preventive Medicine showed that young dog owners are more physically active.dog owners had a 54% higher probability of getting the recommended amount of physical activity. According to the reviewed research, owning pets may be linked to a: Additionally, pets can have a beneficial impact on the body’s response to stress.“, A 2007 report published in the British Journal of Health Psycholog revealed that having a pet dog improves your physical and mental health more than having a cat., Levine said:,“ “In essence, data suggest that there probably is an association between pet ownership and decreased cardiovascular risk. What’s less clear is whether the act of adopting or acquiring a pet could lead to a reduction in cardiovascular risk in those with pre-existing disease. Further research, including better quality studies, is needed to more definitively answer this question.” Even though the association between having a pet and a reduced risk of heart disease is likely, Levine explained, people should not have a pet solely for that reason.“, Written by Sarah Glynn “ According to a recent study, keeping active is key to cardiovascular health and longevity in older adults, regardless of whether or not they exercise regularly. „“ Researchers from The Swedish School of Sport and Health Sciences and Karolinska Institutet in Stockholm, Sweden, used a cohort study of over 4,200 Stockholm residents aged 60 and over.
The results of the study, which tracked participants’ cardiovascular health for around 12.5 years, were published online in the British Journal of Sports Medicine. „, The findings show that keeping active through gardening or DIY projects can cut the risk of heart attack or stroke by up to 30%. “ At the beginning of the study, researchers conducted a health check on participants, which included information on lifestyle, such as diet, smoking and alcohol intake, and how physically active they were.